Tuesday 22 July 2008

Jeanette and I had a good trip on the plane back to Bristol. I still have my pressure pad on as the vein Professor Vogl goes into needs constant pressure on it for 24 hours.Jeanette drove back to Plymouth in her car while I relaxed to the sounds of David Essex.

I have had a call from the BBC who I have kept in touch with and they want to do a piece to camera about the results from the chemo embolization.

This is good news as I was going to ask them about doing it. I am shatterd but will be doing the filming today. I am picking Kieran up from school, it will be good to see him.

Jeanette and I met Dawn and her friend, Sarah at her hotel last night which was an extra bonus but has made us very tired today. We could have chatted all night. We left Dawn and Sarah at around 1:ooam and got up this morning at 5:30....ouch!!!


It was good to meet such an inspirational lady who has a lot more going on than I do.

Meeting Dawn


I met Dawn Hughes last night. Dawn has been a great support to me and has inspired me to come to Germany for this treatment. She has been so helpful even though she has had her own cancer issues to deal with.


It was so good to meet her, we could have talked all night but she has her procedure in the morning and I wish her all the luck with it, she deserves it.


Thanks Dawn, you have been amazing!

Monday 21 July 2008

Good Morning

It is a beautiful morning in Frankfurt, the sun is streaming through the window. I am looking forward to seeing Professor Vogl and finding out if there are any more improvements with the Chemoembolization.
Jeanette and I will be leaving the hotel at 9:00am for the appointment at 10:00am. Theo seems to love it here. He has settled in very well and hopefully he has packed more of his belongings for a longer stay.
Good luck to Jill in Texas who is having an operation today.
She has Mesothelioma and it is very advanced. She is a fantastic lady who has been through a lot.
Her tumor is Mr Meso and she is waiting for him to move on.

Mr Meso, start talking to Theo, he will tell you how good it is outside and how to cope on your own with out Jill.
Maybe you could visit him in Germany, make it a long trip!!!

Jeannette and I went into Frankfurt last night and ended up in the middle of what looked like a gay pride rally. There was a comedian on stage who, from the audiences reaction, was funny. We couldn't understand a thing. We recognized the Abba song though!
We walked around Frankfurt town centre and found the biggest bird bath ever!
I think the pigeon was very proud of himself.Well I have to go and get showered.
I am going to meet Dawn tonight if I feel up to it.
She is coming in for her treatment and we have been in touch on email for a while. Dawn has her own website.

http://www.wigstowishes.org.uk/

And the good news from Germany is .......

Theo has taken another 5-8% of his belongings and left. I `am so pleased. Jeanette was more excited than me and ran screaming, very discreetly, through the corridors of the university clinic. Professor Vogl saw us on the ward around 8:30pm German time and told us the good news. I have been told there is another treatment in August. I thought there were only 3 but now there are 4. We will be meeting Dawn soon and will catch up with her about what has been happening.

Sunday 20 July 2008

All packed and ready to go


I am all packed and ready to go.Jeanette and I will be off to Germany for my last treatment with Professor Vogl.

I really hope that I get a good result like the last one.

If not, I am happy with the amazing result already. I am not going to be angry if there is no more shrinkage.

I have gained so much from this and hope to put it out in the public domain when I come back. Auf wedersein!

Monday 7 July 2008

Back to work


I have finished my rotation in work. I had an hour offline so left at 7:00pm instead of 8:00pm.
My manager organises an offline lottery and once a week someone wins it and I did this week.....woo hoo!!
I have worn my tiara all day as I want to feel as good outside as I do inside and anything I gain in work like stats or offline lottery, I will wear it.

Don't know how long it Will last and people may get fed up with my happiness but I am not bothered by that at all.
Kieran is off to his senior school tomorrow for the day. He says he is looking forward to it which is good.
I am so pleased to be able to be here for this because it was all so different 18months ago.
He is also off to Disney land Paris next week with his dad and I will really miss him.

Friday 4 July 2008

Celebrating the news

I went out this evening with Siobhan, Kieran and Siobhan's boyfriend, Seddon, to celebrate my good news. I haven't felt this happy for a long time.
This is such a good feeling and I want it to go on for a long time.
It was good to toast the next few years as I can see my future on the horizon and it looks good.
I am so grateful to Professor Vogl for helping me as I feel like I have found a little miracle.
Everyone with Mesothelioma should get this treatment and hopefully now it will be possible.

More good news

My oncologist was brilliant this morning.
I was with my friend, Jeanette and my daughter, Siobhan.
We arrived there at 9:15am, we were called in early and my friend, Wendy, was late, not her fault as the appointment was for 9:30am and I think my Dr was so excited, he called us in at 9:15am!.
At first my oncologist was bubbling about the lymph node shrinking.....yay!!!........ and then went on to say that he couldn't predict what mesothelioma will do and that the disease was now very stable.
All good I thought and then I handed him the information from Germany and his face dropped. He was rather shocked to see the paper work for the 2 embolizations I have had and I was surprised as he had sent all the information to Germany, well....his secretary had.
He was very pessimistic about the procedures until Jeanette told him that 2 different veins were used and that she had watched the whole procedure on the screen in the theatre.
He then realised that Professor Vogl was very reputable. He asked for some more information about the procedures as he wants to know more about the area where the embolization is administered.
He then said that Chemoembolization is performed in Derriford Hospital, Plymouth, but not for Mesothelioma.
He said he was going to discuss this with the radiologist and I asked him if it could be done for Mesothelioma in Plymouth as it is shown to work.
He was very positive about it and said he wanted to show the info to others involved with Chemoembolization in Plymouth.
I also asked about Dendretic cell vaccine and he is going to look into that and let me know if he can find some one in the UK who can do it. He has also commented again about my weight loss and has prescribed fish and chips 3 times a week!
He is now monitoring my weight so I really do need to start putting it back on again even though I feel better for reaching my BMI.
All in all it has been a very good morning. If I can persuade Plymouth's hospital to take on this procedure then hopefully it can be done all over the country.
My friend, Julie looked after Kieran for me as he was off school again.
I went out to pick up Kieran who had been watching......guess what.........yes......TRAINS......... as Julie can see them from her kitchen window.
He was in his element. We then went into town and I treated myself to a nintendo DS and a game .... SPACE INVADERS for the DS!!!
Julie gave me a bottle of champagne to celebrate this good news.