It has been an amazing few months. I returned from Germany on 14th December and have been given the best Christmas gift I could ever wish for.
I had my last procedure done on 12th December and Professor Vogl told me it had shrunk again....another 10%! That is 53% gone now....and it didn't stop there!!
When Jeanette and I went to see him for the consultation later that day, he said that the tumour was dead....sorry Theo....that's a bit harsh.... I must admit I had a twang of sadness when the Prof said Dead as I want to feel the Theo has moved to Germany and he is not hurt as we have had a good relationship. He was kind to me for a whole year. I asked him if Theo would come back and he said he may not. I was overjoyed and am still elated by the news. I cannot take it in at the moment.
I said I wanted to get the procedure over to the UK and he said I would have a better chance of getting a rocket on the moon.....I love a challenge...so I am looking for my rocket.
I cannot believe that Jeanette and I have finished our adventure ad we have got such a wonderful result.
Jeanette has been a great support to me. She has done so much, leaving her family to support me. I hope she knows that I appreciate what she has done for me. My next appointment will be in March for a scan. I will travel to Germany and see Professor Vogl who is following up on the progress. By then the tumour should be virtually gone....yay!
Wednesday, 10 December 2008
Thursday, 6 November 2008
Another good result
Wow....another 10% gone!!
43% now.....
Professor Vogl asked who the patient was when he came into the operating theatre and I told him Jeanette was : )
He then said that we had another significant change.....10%!
He told me to keep doing whatever I am doing as it was working. He seemed very suprised to see more of the tumour had gone.
Sorry about the terrible picture but it did emulate what we were feeling when we found out about the 10% decrease and the excitement that we could show 5 hours later. Talking of pictures, the one of Jeanette (below) is lovely. We stepped off the plane and into Christmas!
The decorations were beautiful, as you can see!
Jeanette and I are such children.....we gasped with excitment when we saw them. The Germans must think we have lost it!
43% now.....
Professor Vogl asked who the patient was when he came into the operating theatre and I told him Jeanette was : )
He then said that we had another significant change.....10%!
He told me to keep doing whatever I am doing as it was working. He seemed very suprised to see more of the tumour had gone.
Sorry about the terrible picture but it did emulate what we were feeling when we found out about the 10% decrease and the excitement that we could show 5 hours later. Talking of pictures, the one of Jeanette (below) is lovely. We stepped off the plane and into Christmas!
The decorations were beautiful, as you can see!
Jeanette and I are such children.....we gasped with excitment when we saw them. The Germans must think we have lost it!
Saturday, 27 September 2008
Feeling tired, sick but very happy
I took my sick note into work today. It was good to see my team mates. I had a lot of hugs and happy faces greeting me.
They are all so supportive and make going to work a gift.
I have been feeling tired today and got my head down this afternoon.
Kieran is with his dad until Monday. At least that will give me some time to recuperate.
I am getting my little 5 minute talk ready for Saturday.
It is the Mesothelioma UK's 3rd patient and carer day at the Queens hotel, Leeds.
I am looking forward to it.
My friend, Helen is coming with me.
I will write a report on the events of the day. Last years event was brilliant.
I came away feeling so positive and met a lot of wonderful people all striving for the same goal as me.
I am hoping that the chemoembolization procedure I have had done will be considered for this country. If Professor Vogl gets his team here with their mobile unit, that would be wonderful.
I want all Meso sufferers to benefit from this procedure.
For more info about Saturday, please copy and paste the link below.
http://www.mesothelioma.uk.com/
I took my sick note into work today. It was good to see my team mates. I had a lot of hugs and happy faces greeting me.
They are all so supportive and make going to work a gift.
I have been feeling tired today and got my head down this afternoon.
Kieran is with his dad until Monday. At least that will give me some time to recuperate.
I am getting my little 5 minute talk ready for Saturday.
It is the Mesothelioma UK's 3rd patient and carer day at the Queens hotel, Leeds.
I am looking forward to it.
My friend, Helen is coming with me.
I will write a report on the events of the day. Last years event was brilliant.
I came away feeling so positive and met a lot of wonderful people all striving for the same goal as me.
I am hoping that the chemoembolization procedure I have had done will be considered for this country. If Professor Vogl gets his team here with their mobile unit, that would be wonderful.
I want all Meso sufferers to benefit from this procedure.
For more info about Saturday, please copy and paste the link below.
http://www.mesothelioma.uk.com/
Friday, 26 September 2008
33%
Wow....that looks good, one third gone!!!
Jeanette and I had an early start today, the hotel was beautiful, we left at 7:00am for the airport.
The flight was great and Jeanette had a little panic when we landed.
She couldn't find her ticket for her car. Turns out I had it all the time!!
She has been so wonderful and I am thrilled that she like the hotel.
I slept for about an hour when I got home, I made an appointment with my GP to get a sick note. I got so carried away with the diagnosis and forgot to ask him for it. I eventually got it though.
Tomorrow I will take it into work.
Some good news is the Professor Vogl and his team are interested in bringing a mobile unit to the UK.
This would be so good as it would give a lot of people the oppurtunity to have what I have had.
Wow....that looks good, one third gone!!!
Jeanette and I had an early start today, the hotel was beautiful, we left at 7:00am for the airport.
The flight was great and Jeanette had a little panic when we landed.
She couldn't find her ticket for her car. Turns out I had it all the time!!
She has been so wonderful and I am thrilled that she like the hotel.
I slept for about an hour when I got home, I made an appointment with my GP to get a sick note. I got so carried away with the diagnosis and forgot to ask him for it. I eventually got it though.
Tomorrow I will take it into work.
Some good news is the Professor Vogl and his team are interested in bringing a mobile unit to the UK.
This would be so good as it would give a lot of people the oppurtunity to have what I have had.
Thursday, 25 September 2008
Another good result
Theo is doing well and loving it here.
He has now removed another 15% of his belongings.
That means there is a 33% difference now in the size of the tumor.
He has now removed another 15% of his belongings.
That means there is a 33% difference now in the size of the tumor.
I am having another procedure in November and one in December, and that should be it.
Professor Vogl's team told me that they would like to set up a mobile treament centre in the UK for mesothelioma.
This would be wonderful if it happens as there has been a big improvement in the tumour shrinking and my well being.
My worries have melted away and I am a very happy soul at the moment.Well done Theo!!
Professor Vogl's team told me that they would like to set up a mobile treament centre in the UK for mesothelioma.
This would be wonderful if it happens as there has been a big improvement in the tumour shrinking and my well being.
My worries have melted away and I am a very happy soul at the moment.Well done Theo!!
Wednesday, 24 September 2008
We have arrived!!
Jeanette picked me up at 7:00am and we left for Bristol airport.
We had a very safe journey to Frankfurt and are staying in the Radisson in Frankfurt.
Jeanette has had her eye on this hotel since our first visit so, I wanted to suprise her for all the help and support she has given me.
It is lovely, we are on the 13th floor (hope that isn't an omen) and have a wonderful view of the city.
We are going to have something to eat and are going to enjoy the wonderful German hospitality.
We have to be up early tomorrow as my appointment with Professor Vogl is at 8:00am.
Jeanette and I had a wander around Frankfurt and found Romer, our favourite place. We stopped at an Indian resteraunt and had a lovely meal. The decor was wonderful, we felt like we were sitting in thrones
We were asked by a German man how to get to Romer and Jeanette directed him!!
She is so good at finding her bearings, unlike me.
We also saw a beer bike, What is a beer bike I here you say...... Well, it is a travelling bar that has bicycle saddles on it. One disgusted German passed us and shouted "Bier Bike!!!'...he wasn't impressed.
She is so good at finding her bearings, unlike me.
We also saw a beer bike, What is a beer bike I here you say...... Well, it is a travelling bar that has bicycle saddles on it. One disgusted German passed us and shouted "Bier Bike!!!'...he wasn't impressed.
We loved this idea and thought there should be one or two in Plymouth.
Jeanette is sat in the hotel window at the moment trying to take a picture of the Frankfurt skyline at night.
Jeanette is sat in the hotel window at the moment trying to take a picture of the Frankfurt skyline at night.
Tuesday, 23 September 2008
Frankfurt again
Jeanette and I will be travelling to Germany tomorrow.
We will have a little trip around Frankfurt when we get there and chill out.
We both need it as Jeanette has been looking after her Grand daughter which she enjoys but it must be hard work.
I am off to work now and will finish packing when I get home. Rich will be with us tonight as I have to leave early on Wednesday.
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